Estate Planning – Child with Disabilities

Preparing for the Future: Estate Planning When You Have a Child with Disabilities
Understanding the Importance of Estate Planning
by Tim Louis
Estate planning is a critical process for ensuring that your assets are distributed according to your wishes after your death. However, when you have a child with disabilities, the stakes are even higher, and the planning becomes more complex. It’s not just about distributing assets; it’s about securing your child’s future, ensuring they have the financial resources, care, and protection they need throughout their life.
In Canada, estate planning for children with disabilities involves unique challenges. Parents must navigate the complexities of ensuring that their child remains eligible for government benefits while also receiving the inheritance they deserve. This often involves setting up a special needs trust or other legal arrangements that protect the child’s financial interests without jeopardizing their access to essential services.
Overview of Key Legal and Financial Tools
When planning for the future of a child with disabilities, it is crucial to utilize both legal and financial tools that can secure their well-being and ensure that they receive the necessary support throughout their life. Below, we discuss some of the most important tools that Canadian parents should consider.
- Wills
A will is a fundamental legal document that outlines how your assets will be distributed after your death. For parents of children with disabilities, a well-structured will can ensure that your child’s future needs are met without jeopardizing their eligibility for government benefits. By explicitly naming guardians and trustees, you can designate who will manage your child’s inheritance and care, making sure that their specific needs are prioritized.
- Henson Trusts
The Henson Trust is a unique legal instrument in Canada, designed specifically for beneficiaries with disabilities. This type of trust allows parents to leave assets to their child without affecting the child’s entitlement to government disability benefits. The assets in a Henson Trust are not considered the property of the beneficiary, thus safeguarding their eligibility for provincial disability support programs such as the Ontario Disability Support Program (ODSP) or the British Columbia Disability Assistance.
- Powers of Attorney
A Power of Attorney (POA) is another critical legal document. It allows you to appoint someone to make decisions on your behalf if you become incapacitated. For parents of children with disabilities, establishing a POA is vital to ensure that decisions related to the child’s care, housing, and medical needs are managed according to your wishes.
- Registered Disability Savings Plans (RDSPs)
The RDSP is a powerful financial tool that allows parents to save for the long-term financial security of a child with disabilities. Contributions to an RDSP grow tax-free, and the Canadian government provides matching grants, which can significantly enhance the savings over time. RDSPs are specifically designed to ensure that the funds are used to improve the quality of life for the child with disabilities, providing peace of mind that their future financial needs will be met.
Creating a Comprehensive Plan: Steps and Considerations
Starting the Estate Planning Process: The first step in estate planning when you have a child with disabilities is to gather all relevant information about your child’s needs, your financial situation, and your long-term goals. This may include consultations with financial planners, lawyers, and healthcare professionals to ensure every aspect of your child’s future is considered.
Key Considerations for Future Care: Planning for the future care of your child involves selecting a legal guardian who will be responsible for making decisions on behalf of your child when you are no longer able to do so. This is a crucial step that requires careful thought and discussion with potential guardians to ensure they are prepared for this responsibility.
Ensuring Financial Stability: One of the main objectives of estate planning is to ensure that your child has the financial resources needed for their care and well-being. This may involve setting up a Henson Trust or contributing to a Registered Disability Savings Plan (RDSP) to provide ongoing financial support.
Legal Guardianship: Appointing a legal guardian involves more than just naming someone in your will. It requires legal documentation and possibly court involvement to ensure that the appointed guardian has the legal authority to care for your child.
Special Trusts and Tax Benefits
When planning for the future of a child with disabilities, understanding the role of special trusts and tax benefits is crucial. One of the most valuable tools in this process is the Henson Trust, a discretionary trust designed specifically to protect the assets of a person with disabilities. This trust allows the beneficiary to maintain eligibility for government benefits while still receiving financial support from the trust. The Henson Trust is particularly beneficial in Canada, as it is recognized in many provinces, including Ontario and British Columbia, and is essential for safeguarding the financial future of a disabled child.
In addition to trusts, several tax credits and benefits are available to families. The Disability Tax Credit (DTC) is a non-refundable tax credit that helps reduce the amount of income tax payable for eligible individuals with disabilities. This credit can be transferred to supporting family members if the disabled person has no taxable income. Furthermore, the Registered Disability Savings Plan (RDSP) offers significant financial advantages. It allows for long-term savings with contributions matched by government grants, making it an indispensable part of any estate plan for a disabled child.
These tools not only provide financial security but also ensure that the child’s quality of life is maintained, even after the parents or guardians are no longer able to provide support directly. Properly setting up a Henson Trust and taking full advantage of the DTC and RDSP requires careful planning and professional legal assistance to navigate the complexities of these benefits and ensure they are utilized to their full potential.
This comprehensive approach ensures that all aspects of the child’s future, from financial stability to care arrangements, are thoughtfully considered and effectively managed.

The Importance of Professional Legal Assistance
When it comes to estate planning for a child with disabilities, it is crucial to have a well-thought-out and tailored plan. Such planning involves navigating complex legal and financial tools like Henson Trusts, RDSPs, and various tax benefits to ensure your child’s future is secure and that they receive the care and financial stability they need. The stakes are high, and the consequences of making mistakes in this process can be significant, potentially jeopardizing your child’s access to essential resources and benefits.
Professional legal assistance can make all the difference. Tim Louis, with his extensive experience in disability law and estate planning, offers personalized guidance to help you navigate these complexities. By working with a knowledgeable lawyer, you can create a comprehensive estate plan that addresses your child’s unique needs and ensures their well-being for years to come.
Wills Variation: Ensuring Fairness in Estate Distribution
When a loved one passes away, the distribution of their estate is typically guided by their will. However, there are circumstances where the will might not provide fair or adequate support to certain beneficiaries, such as children or spouses. This is where Wills Variation claims come into play.
In British Columbia, the Wills, Estates, and Succession Act (WESA) allows for beneficiaries to challenge a will if they believe it does not fairly distribute the estate. This process is known as a Wills Variation claim. It’s particularly relevant for families with children with disabilities, where additional financial support might be necessary.
Why Consider a Wills Variation?
A Wills Variation claim might be considered when:
- The will provides disproportionately low support to a spouse or child.
- The needs of a disabled child are not adequately addressed.
- The will was made under undue influence or without consideration of the current financial needs of beneficiaries.
Legal Support in Wills Variation
Navigating a Wills Variation claim can be complex, and it’s crucial to have expert legal advice. Tim Louis specializes in assisting families in these sensitive situations, ensuring that the interests of all parties, particularly those of children with disabilities, are fairly represented and protected.
If you believe a will does not adequately provide for your needs or those of a loved one, Tim Louis offers comprehensive legal support to guide you through the process of a Wills Variation claim, helping to secure the financial future of those who may be left vulnerable.
If you’re ready to take the next step in securing your child’s future, contact Tim Louis today for expert legal advice tailored to your family’s needs. Schedule a free consultation and learn more about how you can create a solid estate plan that provides peace of mind.
With extensive experience in disability law and estate planning, Tim Louis is committed to ensuring your loved ones’ futures are secure.

My daughter and I had the pleasure of meeting with this very knowledgeable disability lawyer to help us set up a trust fund.We had lots of questions which Tim answered patiently so that we understood the ramifications of setting up a trust. I would highly recommend Tim without hesitation and thank him for being an advocate for the disabled in Metro Vancouver. Do not hesitate to go to Tim for your litigation needs.
Contact Tim Louis Today
Phone: (604) 732-7678
Email: timlouis@timlouislaw.com
Website: TimLouisLaw.com
Schedule a free consultation to discuss your legal options and plan for a secure future.
Frequently Asked Questions
Estate planning for a child with disabilities involves creating a financial and legal plan that ensures the child’s future well-being and security. This often includes special trusts, guardianship arrangements, and other legal tools to protect the child’s interests without affecting their eligibility for government benefits.
A Henson Trust is a crucial tool in Canadian estate planning for children with disabilities. It allows parents to leave assets to their child without disqualifying them from provincial disability benefits, ensuring long-term financial support.
The key steps include assessing your child’s needs, setting up legal instruments like wills and trusts, and appointing guardians and powers of attorney. Working with a lawyer who specializes in disability estate planning is essential.
Yes, the RDSP is available to Canadian parents as a long-term savings plan for children with disabilities. Contributions are tax-free, and the government offers matching grants to help grow the fund.
It’s important to choose someone who understands your child’s needs and is willing to take on the responsibility. You should also ensure that legal documentation is in place to authorize the guardian’s role.
To avoid pitfalls, it’s essential to work with an experienced lawyer who understands disability law and estate planning. Regularly reviewing and updating your plan as circumstances change is also important.
Families can take advantage of tax credits like the Disability Tax Credit (DTC) and the benefits of RDSP contributions, which are designed to support the long-term financial needs of individuals with disabilities.
A lawyer ensures that your estate plan is legally sound, tailored to your child’s specific needs, and optimized to maintain eligibility for government benefits. Legal expertise is crucial in navigating the complexities of disability law.
Without a proper estate plan, your child’s financial future may be at risk, and they may lose access to essential government benefits. It could also lead to legal disputes over guardianship and asset distribution.
The Henson Trust ensures that the assets left to your child are not considered their property, thus safeguarding their eligibility for government disability support programs, while still providing financial security.
Further Reading
Government of Canada – Registered Disability Savings Plan (RDSP)
Learn about RDSPs, eligibility, and how they can help provide long-term financial security for individuals with disabilities.
Government of Canada – Disability Tax Credit (DTC)
Information about the Disability Tax Credit, eligibility criteria, and how it can benefit individuals with disabilities and their families.
Planned Lifetime Advocacy Network (PLAN)
A Canadian non-profit organization focused on helping families secure a good life for their relatives with disabilities, including estate planning and RDSPs.
Inclusion Canada
Offers resources on financial planning, legal considerations, and guardianship for families of individuals with intellectual disabilities.
